My Challenge to defeat prostate and bone cancer

First Published 30 September 2023

Well, here I am again. Another blog about cancer but this time it’s me! It is more than 11.5 years since I added the final chapters to the “Wendy’s Army” blog, so this is very much Déjà Vu. I don’t know what I have done to upset those “upstairs” but they sure are making sure I get tested in this life. They managed to take Wendy, sadly, but they are not going to get me without the same degree of fight and determination shown by her.

As Wendy would be the first to acknowledge, these journeys cannot be undertaken alone. No cancer patient can undertake the trip without the support of loved ones.

As many will know, Kim and I being together at this stage in our lives is a story, which goes back over 30 years. Maybe we will tell that story at some point. So many have said we should!

I want to start this blog by acknowledging Kim, who is as up for the challenge of beating this cancer as I am. I simply could not do this without the caring nature of Kim, her inspiration to support me and lead the effort to get through this and we cannot wait for the day we will be told I’m in complete remission.

Kim is my rock! She is right here with me, and I couldn’t be a luckier man to be facing this with her. I love her with all my heart and, together, we are going to be successful in fighting and defeating this disease!

Before I start to tell the story and start the journey, let me explain why I have created this blog. There are three main reasons:

  1. Firstly, and most importantly, the majority of my family, my friends and my former colleagues are now aware of my diagnosis. Naturally, they all wish to be kept informed about my ongoing treatment and, rather than constantly tell people individually, it makes sense to keep everybody that wishes to be kept up to date informed on a consistent basis. When recounting detail, it is very easy to forget what you have said and to whom.
  2. I find it very cathartic. Telling the story gives me the chance to reflect on what is happening, rather than just repeating facts about the treatment and, just as importantly, some of those reading the blog will have people they know that have been on the same, or a similar journey. I think sharing experiences is so valuable and I have already found others that have been able to provide valuable insights and connections, which I will cover later.
  3. Thirdly, I’m not the only one undertaking this type of cancer journey. I have already met other men who have experienced prostate cancer and there will be many more in the future. My experience may just help other guys on their own journey. In Australia, over 24,000 men are diagnosed with prostate cancer each year, with 1 in 5 men at risk of being diagnosed before they turn 85. And it is far from being confined to Australia. In the UK, Prostate cancer is the most common cancer in men. More than 52,000 men are diagnosed with prostate cancer every year on average – that’s 144 men every day. Every 45 minutes one man dies from prostate cancer – that’s more than 12,000 men every year.

  • So, what led me to discover I had cancer?

    It’s a long story! It started on Friday 11th March 2022! Around that time, Australia had experienced huge rainfall volumes. I think in Bawley Point, where we live, there was circa 250ml in a few months. This was following the bush fires in early 2020. They say this is a country of extremes and that

    Continue reading this update

  • Telling Kim the news!

    Let’s remember that Kim and I have only been together for 2 years. We have been so happy in our retirement in our new home and surroundings with our animals and those all around us. The first day we moved in a King Parrot came to see us. We started to feed it sunflower seeds

    Continue reading this update

  • Medical Reviews

    Ahead of the initial meeting I was asked to attend the radiology unit the very next day for a full body CT scan, which would then be available to Dr Nicholson. This was undertaken on Friday 4 August. On Monday 7 August I had a second meeting with Dr Burt, who had the CT scan

    Continue reading this update

  • Why is all this detail so important?

    Well, if I hadn’t hit that pothole, and if I hadn’t buckled the wheel, I would not have taken it for repair and a second new tyre. I would not, thereafter, be faced with trying to get the wheel back on the car and., therefore, would not have fractured my pubic ramus. Without the fracture

    Continue reading this update

  • The treatment journey begins!

    I had my first consultation with Dr Kasherman on 22 August. It was an almost three-hour journey to Dr Kasherman’s consultation rooms in Woollongong. Dr Nicholson had wanted me to see one of her colleagues, Dr Gary Tincknell, with whom she worked very closely, but he was away on holiday for 4 weeks, waiting any

    Continue reading this update

  • Non-medical considerations

    As you would expect, Kim and I had many conversations about the diagnosis. We had moved into our beautiful home just under two years ago, after I returned to Australia. I had returned to the UK to sell my home, gain a visa, and return asap to Australia. But I left on the last day

    Continue reading this update

  • Back to medical matters

    Following my meeting with Dr Helen Nicholson, the prostate oncologist, she arranged for me to see Dr Steven Chin, a radiology oncologist, with whom she also works close, and with Dr Tincknell. They are part of the same multidisciplinary team that meets weekly to review their cases. We met on Wednesday 30 August. At the

    Continue reading this update

  • Experience with the treatments

    As we sit here today, 30 September, this is where I have reached with my treatments:

    Continue reading this update

  • Next Steps

    I had my Day 10 bloods taken on 29 Sept. I’m seeing the cancer nurse at the clinic where I have my chemo administered on 3 October. He will have the 10-day blood tests. I have just arranged to see an acupuncturist on 4 October. Acupuncture is very good for trying to rebalance the body

    Continue reading this update

  • That was a good week, but sad!

    A week ago today, Saturday 30 September, our dream started to unfold. We had agreed that rehoming Kim’s horses was the right thing to do, as was moving home. We got a call from the lady that had agreed to take our beautiful 33 year-old Palomino pony, Kirra. I think it was the first time

    Continue reading this update

Space

As we sit here today, 30 September, this is where I have reached with my treatments:

  1. I had the Degarelix injections on 25 August. I have had no side effects from those injections. They are to be replaced, as monthly injection, by Lucrin, which is only 6 monthly.
  2. I started the Darolutamide tablets two weeks later, on 8 September – no side effects. I have not grown boobs and my voice remains very male!! Phew!
  3. I had the first of my Docetaxel chemotherapy sessions on 21 September. There has been some impact. The first 5 days I would say I did not notice any changes. From then I have experienced some nausea, not bad but not entirely comfortable. This was one of the, many, side effects I was warned to expect. I have some tablets from the cancer nurse, and I’m to take one at the first sign of discomfort. I have also learned to spread my food intake over 6/7 smaller amounts. I’ve lost some more weight, which I need to watch carefully. This is NOT a diet!! On the day of the chemo, I was 77.3 kgs (down from my previous 85kgs) and it is now 75.1 kgs on day 9 of the chemo. My Naturopathic Oncologist has given Kim and I some guidance, which we will take on board. Kim also asked her if acupuncture might help, particularly if homeostasis (The state of balance within all physical systems needed for a body to function properly and survive) was to be gained. She strongly suggested it would as it helps to balance the body. My blood sugar levels are currently too high also. She is not overly concerned as it is probably associated with the drugs and should rebalance. I monitor it daily. My blood pressure has also dropped. I was, prior to the treatments, around 130/70. This is down to around 110/65. Not a problem but I have noticed I feel lightheaded if I get up out of a chair too quickly. I just need to make sure I continue to monitor it daily and report any further drop. Finally, I’d say I’m now sleeping better after a few restless nights following the first session and I’m not feeling quite so tired and lacking in energy.