My Challenge to defeat prostate and bone cancer

First Published 30 September 2023

Well, here I am again. Another blog about cancer but this time it’s me! It is more than 11.5 years since I added the final chapters to the “Wendy’s Army” blog, so this is very much Déjà Vu. I don’t know what I have done to upset those “upstairs” but they sure are making sure I get tested in this life. They managed to take Wendy, sadly, but they are not going to get me without the same degree of fight and determination shown by her.

As Wendy would be the first to acknowledge, these journeys cannot be undertaken alone. No cancer patient can undertake the trip without the support of loved ones.

As many will know, Kim and I being together at this stage in our lives is a story, which goes back over 30 years. Maybe we will tell that story at some point. So many have said we should!

I want to start this blog by acknowledging Kim, who is as up for the challenge of beating this cancer as I am. I simply could not do this without the caring nature of Kim, her inspiration to support me and lead the effort to get through this and we cannot wait for the day we will be told I’m in complete remission.

Kim is my rock! She is right here with me, and I couldn’t be a luckier man to be facing this with her. I love her with all my heart and, together, we are going to be successful in fighting and defeating this disease!

Before I start to tell the story and start the journey, let me explain why I have created this blog. There are three main reasons:

  1. Firstly, and most importantly, the majority of my family, my friends and my former colleagues are now aware of my diagnosis. Naturally, they all wish to be kept informed about my ongoing treatment and, rather than constantly tell people individually, it makes sense to keep everybody that wishes to be kept up to date informed on a consistent basis. When recounting detail, it is very easy to forget what you have said and to whom.
  2. I find it very cathartic. Telling the story gives me the chance to reflect on what is happening, rather than just repeating facts about the treatment and, just as importantly, some of those reading the blog will have people they know that have been on the same, or a similar journey. I think sharing experiences is so valuable and I have already found others that have been able to provide valuable insights and connections, which I will cover later.
  3. Thirdly, I’m not the only one undertaking this type of cancer journey. I have already met other men who have experienced prostate cancer and there will be many more in the future. My experience may just help other guys on their own journey. In Australia, over 24,000 men are diagnosed with prostate cancer each year, with 1 in 5 men at risk of being diagnosed before they turn 85. And it is far from being confined to Australia. In the UK, Prostate cancer is the most common cancer in men. More than 52,000 men are diagnosed with prostate cancer every year on average – that’s 144 men every day. Every 45 minutes one man dies from prostate cancer – that’s more than 12,000 men every year.
  • I have been feeling really good! I had my bloods checked on 10 October, the day before I was due to have my second session of chemo the following day. My white blood cell count had recovered sufficiently from the normal dip following the first chemo session. My day 10 bloods following session one were

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  • Since my last update: The meeting with Bill, the cancer nurse at Milton & Ulladulla Cancer Centre went well. I had had my bloods taken immediately before the meeting, so Bill did not have these available. However, he had seen the ones taken on day 10 (19 October) after the second chemo session on 11

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  • I had my pre chemo bloods taken on Tuesday 21 November. I had my fourth chemo session on Wednesday morning 22 November. The nursing team confirmed they had the blood results through and everything was looking good. They had obviously read Dr Gary Tinckner’s note from my review meeting with him on Friday 17 November

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  • The last three weeks, since the 4th chemo session, have been quite quiet on the health front, thankfully. My stomach has been a little less tolerant of the chemo, as expected. I’ve taken around 6-8 imodium to help, whereas I had previously only had to take a couple. The cancer nurse, when I discussed it

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  • On Wednesday 3 January I had my sixth, and optimistically my last, chemo session. My bloods, taken the day before, were all normal and the session proceeded exactly as previous ones, no issues. That night, however, I could not sleep at all. The phrase often used by the cancer team is “wired”. I could not

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  • Earlier today I had my scheduled appointments with Gary Tincknell, Medical Oncologist, and Stephen Chin Radiology Oncologist. I met Gary first and he had the blood results taken last Friday, 9 February which, sadly coincided with the 12th anniversary of Wendy’s passing. I could tell from his smile that the news was good! When measured

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  • It has now been just over 4 months since my last chemo session. It was suggested to me that it can take from six to 12 months for the chemicals to fully leave my system. From my perspective I feel this will be nearer the shorter end of that timeframe. I have been feeling really

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  • I had a telephone meeting with my medical oncologist, Gary Tinknell, on Tuesday last week. He remains very pleased with my progress. He had my blood results from late the previous week. They showed that my PSA remains at 0.01 and told me there are three levels within that score and I had dropped two,

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  • Having had my bloods taken last Friday, Kim and I visited my oncologist, Dr Gary Tinknell, this morning. My PSA score remains at 0.01, the lowest it can possibly be. He and we were delighted with the continued good news. It is not just the medication that is sustaining this momentum, but the holistic approach

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  • I have had a call with Gary Tincknell, my oncologist, following my latest set of blood tests. He said “cancer in your prostate is “undetectable”, which means the PSA score remains at 0.01 for the fourth consecutive quarter. There is no need to amend my medications, just keep doing what I have been. He will

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Space

Ahead of the initial meeting I was asked to attend the radiology unit the very next day for a full body CT scan, which would then be available to Dr Nicholson. This was undertaken on Friday 4 August.

On Monday 7 August I had a second meeting with Dr Burt, who had the CT scan results. Kim was with me. The scan confirmed the original MRI data and being a full body scan, revealed that in addition to the previous MRI revelations and identification of disease, additionally, I had bone cancer in some of my ribs, more extensively in my spine and a couple of other areas.

Kim and I met Dr Helen Nicholson on Tuesday 8 August. She had all the scan results. There was no doubt I had stage 4 bone cancer. The only thing to confirm was whether the primary cancer was in my prostate. Dr Nicholson, whilst Kim left the room, carried out a digital examination of my prostate and confirmed an area, around 25%, was hard, which indicated cancer. Interestingly, Dr Nicholson could see from a PSA test, I was only at level 13. She had expected this to be much higher, but it’s not unusual to be that low in some cases. It was still higher than it should be. She mentioned she had seen some patients with confirmed prostate cancer with a PSA score of 3 and had also seen them in the thousands.

The next step was to carry out a biopsy of the prostate. This would determine the aggressiveness of the cancer, which would in turn determine the relevant treatment journey I would inevitably be on going forward.

I couldn’t believe it when Dr Nicholson said she had an operating theatre space the following day. She does all her surgical work on Wednesdays. She was putting me on the list for the first operation! Can you imagine that on the NHS, even private care in the UK? Me neither!

Let me be clear, I do not have private medical insurance. Dr Nicholson has a limited number of opportunities to include non private patients in her schedule, which is what she chose to do. The health system here in Australia is known as Medicare. It’s the equivalent of the NHS, but if you go private Medicare cover costs up to a point, when the patient then has to contribute. When you read on, bear in mind my only outlay has been a little over $300 for everything that has been done for me.

I had to be at Shoalhaven Private Hospital at 11am the following day, 9 August. The prostate biopsy, undertaken through the perineum, was done under a general anaesthetic. It takes 10/15 minutes and removes tissue from all parts of the prostate, which is only the size of a walnut. I came round from the procedure without any problems, and it wasn’t long before Kim and I set off home. We were back by 15.30.

The collected tissue would be sent to a pathology lab for analysis. In the interim I was to have another scan, which was arranged for Tuesday 15 August. This would be a PET-CT scan because the MRI was very localised to the area of the pain in my hip. To save you looking this up on Google, a Positron Emission Tomography and Computed Tomography scan. Before the PET-CT scan, you get an injection of a small amount of a radioactive sugar called fluorodeoxyglucose-18. This substance is sometimes called FGD-18, radioactive glucose, or a tracer. The cells in your body absorb sugar. Areas that use more energy pick up more of the sugar. Cancer cells tend to use more energy than healthy cells. The PET scan shows where the radioactive tracer is in your body.

At Dr Nicholson’s request, the results of the biopsy and the PET-CT scan were sent to Dr Laurence Kasherman, a medical oncologist as well as to herself for review.

However, in the interim, Kim had started researching prostate and bone cancer. As I mentioned earlier, there is so much value in sharing information – you will learn so much from the experiences of others. It’s so important.

Kim has a good friend and former work colleague, Sue McDonnell. I had met Sue when she came to stay with us some months earlier. Kim had shared the bad news with Sue. Sue knew of a friend of hers Justyna Bilski, who had a friend, Oxana Chekoeva, who had been diagnosed with cancer some 18 months earlier and despite predictions, had defeated it – she was clear. Justyna spoke to Oxana to discuss her regime and it became very clear to Kim and I that we needed a more holistic approach to my treatment – the medical route alone wasn’t going to be the answer for me, or indeed perhaps for any cancer patient. Justyna produced a prostate cancer map and program of core off label drugs and supplements. The map she produced was identical to one produced by Jane McLelland in her book “how to Starve Cancer”. Jane beat cervical, lung, and blood cancers using the missing link to defeat cancer: starving it. I immediately ordered the book.

According to doctors and cancer statistics, Jane should have lived only about 12 weeks after receiving her diagnosis of stage IV cancer (the same stage as mine). But she refused to go down without a fight. Taking matters into her own hands, she dug through medical journals, poring over long-forgotten research and overlooked evidence, looking for clues to overcoming her cancer.

Along the way, she discovered a missing link to defeating cancer: starving it. Based on this concept, she developed her own cancer-starving cocktail—utilizing diet, supplements, and off-label drugs—that proved to be effective alongside the traditional approaches of chemo and radiotherapy.

Now, 18 years later, after suffering from cervical cancer, secondary lung cancer, and treatment-related myelodysplasia, she is alive, well, and cancer-free. And she has made it her life’s mission to help other cancer patients achieve the same results.

Kim and I thought this was just what we needed ahead of the meeting with the medical oncologist, and we prepared materials to enable us to discuss an holistic approach to my treatment. There was sufficient evidence to suggest that modern drugs alone may not be the only way to achieve a successful outcome.