My Challenge to defeat prostate and bone cancer

First Published 30 September 2023

Well, here I am again. Another blog about cancer but this time it’s me! It is more than 11.5 years since I added the final chapters to the “Wendy’s Army” blog, so this is very much Déjà Vu. I don’t know what I have done to upset those “upstairs” but they sure are making sure I get tested in this life. They managed to take Wendy, sadly, but they are not going to get me without the same degree of fight and determination shown by her.

As Wendy would be the first to acknowledge, these journeys cannot be undertaken alone. No cancer patient can undertake the trip without the support of loved ones.

As many will know, Kim and I being together at this stage in our lives is a story, which goes back over 30 years. Maybe we will tell that story at some point. So many have said we should!

I want to start this blog by acknowledging Kim, who is as up for the challenge of beating this cancer as I am. I simply could not do this without the caring nature of Kim, her inspiration to support me and lead the effort to get through this and we cannot wait for the day we will be told I’m in complete remission.

Kim is my rock! She is right here with me, and I couldn’t be a luckier man to be facing this with her. I love her with all my heart and, together, we are going to be successful in fighting and defeating this disease!

Before I start to tell the story and start the journey, let me explain why I have created this blog. There are three main reasons:

  1. Firstly, and most importantly, the majority of my family, my friends and my former colleagues are now aware of my diagnosis. Naturally, they all wish to be kept informed about my ongoing treatment and, rather than constantly tell people individually, it makes sense to keep everybody that wishes to be kept up to date informed on a consistent basis. When recounting detail, it is very easy to forget what you have said and to whom.
  2. I find it very cathartic. Telling the story gives me the chance to reflect on what is happening, rather than just repeating facts about the treatment and, just as importantly, some of those reading the blog will have people they know that have been on the same, or a similar journey. I think sharing experiences is so valuable and I have already found others that have been able to provide valuable insights and connections, which I will cover later.
  3. Thirdly, I’m not the only one undertaking this type of cancer journey. I have already met other men who have experienced prostate cancer and there will be many more in the future. My experience may just help other guys on their own journey. In Australia, over 24,000 men are diagnosed with prostate cancer each year, with 1 in 5 men at risk of being diagnosed before they turn 85. And it is far from being confined to Australia. In the UK, Prostate cancer is the most common cancer in men. More than 52,000 men are diagnosed with prostate cancer every year on average – that’s 144 men every day. Every 45 minutes one man dies from prostate cancer – that’s more than 12,000 men every year.
  • I have been feeling really good! I had my bloods checked on 10 October, the day before I was due to have my second session of chemo the following day. My white blood cell count had recovered sufficiently from the normal dip following the first chemo session. My day 10 bloods following session one were within the acceptable tolerances and…

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  • Since my last update: The meeting with Bill, the cancer nurse at Milton & Ulladulla Cancer Centre went well. I had had my bloods taken immediately before the meeting, so Bill did not have these available. However, he had seen the ones taken on day 10 (19 October) after the second chemo session on 11 October. He said my PSA…

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  • I had my pre chemo bloods taken on Tuesday 21 November. I had my fourth chemo session on Wednesday morning 22 November. The nursing team confirmed they had the blood results through and everything was looking good. They had obviously read Dr Gary Tinckner’s note from my review meeting with him on Friday 17 November as they knew he was…

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  • The last three weeks, since the 4th chemo session, have been quite quiet on the health front, thankfully. My stomach has been a little less tolerant of the chemo, as expected. I’ve taken around 6-8 imodium to help, whereas I had previously only had to take a couple. The cancer nurse, when I discussed it with him, said this was…

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  • On Wednesday 3 January I had my sixth, and optimistically my last, chemo session. My bloods, taken the day before, were all normal and the session proceeded exactly as previous ones, no issues. That night, however, I could not sleep at all. The phrase often used by the cancer team is “wired”. I could not relax, and it felt as…

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  • Earlier today I had my scheduled appointments with Gary Tincknell, Medical Oncologist, and Stephen Chin Radiology Oncologist. I met Gary first and he had the blood results taken last Friday, 9 February which, sadly coincided with the 12th anniversary of Wendy’s passing. I could tell from his smile that the news was good! When measured three months ago, my PSA…

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  • It has now been just over 4 months since my last chemo session. It was suggested to me that it can take from six to 12 months for the chemicals to fully leave my system. From my perspective I feel this will be nearer the shorter end of that timeframe. I have been feeling really well this past month, in…

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  • I had a telephone meeting with my medical oncologist, Gary Tinknell, on Tuesday last week. He remains very pleased with my progress. He had my blood results from late the previous week. They showed that my PSA remains at 0.01 and told me there are three levels within that score and I had dropped two, leaving my prostate cancer, in…

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  • Having had my bloods taken last Friday, Kim and I visited my oncologist, Dr Gary Tinknell, this morning. My PSA score remains at 0.01, the lowest it can possibly be. He and we were delighted with the continued good news. It is not just the medication that is sustaining this momentum, but the holistic approach I have adopted to keep…

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  • I have had a call with Gary Tincknell, my oncologist, following my latest set of blood tests. He said “cancer in your prostate is “undetectable”, which means the PSA score remains at 0.01 for the fourth consecutive quarter. There is no need to amend my medications, just keep doing what I have been. He will review with me again in…

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As you would expect, Kim and I had many conversations about the diagnosis. We had moved into our beautiful home just under two years ago, after I returned to Australia. I had returned to the UK to sell my home, gain a visa, and return asap to Australia. But I left on the last day before the Australian border was closed and the UK locked down due to Covid 19.

I was gone for 15 months and eventually returned in early September 2021. After I sold my UK property, Kim and I started looking at possible locations for a new home. We found our present home in Bawley Point, a 10-acre property, ideal for development into an equine dream for Kim and her horses.. Kim had been happiest in her life when, as teenager, she spent a lot of time with horses.

During the 6-month period immediately before I returned to the UK, Kim was ‘persuaded” by me, to buy a horse. It was dream come true for her and the horse was agisted near her home in Terrey Hills.

We found 40 Willinga Road, Bawley Point, via an internet search. Kim came to see it with her eldest daughter, Hayley’s, partner John. They both loved the house and the land, which would be ideal for horses. Unfortunately, it was a 4 hour drive from Kim’s two daughters and the grandchildren. After a lengthy debate we put an offer in, ahead of the upcoming auction, and it was accepted. Contracts were exchanged within days, but we had time to move as the vendors wanted to be able to shift their considerable possessions to a new home. This suited us as I was no nearer to returning to Australia at that point. So, with contracts exchanged in May 2021 we had until around October to get me back to Australia and prepare ourselves for the move.

I returned to Australia on 3 September 2021. I went straight to a hotel for quarantine of two weeks, leaving on 15th September. We moved to Bawley Point over two days, 2/3 October. My journey from the UK had been very traumatic – my flight was cancelled on the scheduled day of departure, and I had to check into a hotel at Heathrow pending another flight 5 days later. I will not go into any more detail, but you can imagine the fight I had with the airline when I discovered that the flight was not cancelled, I had been bumped off the flight as their quota of quarantine places had been exceeded.

Anyway, I got to Australia, in the end!!

Once we got to Bawley Point we started to plan our projects. Over the past two years we have: installed four stables on the rear of the large shed (the roof already existed as part of the shed and was previously used to store a caravan and boat), added a 10Kwh solar system on the roof of the annex building, added a solar battery, re-laid the driveway and slightly extended it to the big shed, added a 50m x 20m horse arena, added a 16m diameter horse round yard, added a 105,000ltr concrete water tank, (giving a total capacity of 210,000litres), moved the outflow from the septic sewage system, with full approval from Shoalhaven Council, renewed all the fencing that was damaged in the bush fires, added a shipping container to store horse feed and bedding materials, completely redecorated the annex and updated the bathroom, added a full air conditioning system in the main house to provide both warm and cold air, which is zoned throughout, insulated the loft area of the main house, renewed all the smoke alarms in both the main house and annex, replaced the worktops in the main house kitchen with stone, added ceiling fans in two of the spare bedrooms in the main house, added Starlink Internet capability, added a six camera security system, added alarms to both the big Shed and the annex garage, added electric door openers to the 5 garage doors, and added a small tack room within the big shed.

We were at the planning stage for a pool and extended covered patio area for entertaining.

It was at this point I discovered I had cancer.

After lengthy debate, Kim and I decided we could not sustain the lifestyle we had. for the following reasons, we decided to move:

  1. Looking after a 10-acre property, at my age, with three horses and two dogs was already enough of a challenge. I had surrounded us with as much equipment to help but, nevertheless it was not going to be possible with bone cancer.
  2. Kim, as you would no doubt expect, if you knew her, was determined to support me through cancer. It’s the nature of the beautiful person she is. But I felt she also needed support for her. Being this far from her “girls” is bad enough, but while she is looking after me, she too needs them around her. We both knew what this would mean for Kim’s beautiful horses, her dreams. Kim decided, to enable her to focus on my healing, the horses should be re-homed. More of this trauma a little later. Suffice to say this decision was so, so hard for Kim. She idolises the horses and gets so much pleasure out of just being with them every day.
  3. Where we are is not far from local shops and, despite being 5 mins drive to the beach, we are quite isolated, and I felt that I wanted Kim to be closer to “civilisation” in case anything happened to me. You never know.

So, we engaged an agent to sell 40 Willinga Road and it went on the market on 27 September.

Her is a link to the promotional video to support the marketing materials:

https://jojones.agentboxcrm.com.au/contact-067f3ed9e694c9097507e0bf0ec5a5a2-2P0178

The other tough decision I had to make was purely personal on my behalf. About 8 months ago I treated myself to a beautiful Harley Davidson Heritage Softail from 2006. Gary Wallington has a pal. Laurie, who owned the bike. He has a few health challenges and had lost his confidence to ride the machine. I had spoken to Gary about getting a bike on several occasions as he, and a few other guys in the area, have one. I saw the bike and fell in love with it. It’s the perfect colour, has only covered 14,00kms and was in perfect condition. I didn’t hesitate!

Motorcycles and bone cancer do not make happy bed mates – it had to go! I advertised it and quickly got interest. The first guy had to travel 4 hours from Sydney to see it, he was that keen. He asked me if the price was negotiable. I said no as I knew two other people had also seen it and wanted to come and check it out. One of those two guys was from Queensland, and he wanted to fly down to see it. The first guy duly turned up with his mate, a fellow Harley rider. After a quick test drive, he paid the asking price happily. He also bought my two crash helmets, my riding trousers, a pair of brand-new boots that were still in the box, unused, plus some other bits like gloves and jackets. Whilst I was sorry to see the bike go, it had to, and the bonus is that I got back all my outlay on it and my gear! Result! Here is a picture: