My Challenge to defeat prostate and bone cancer

First Published 30 September 2023

Well, here I am again. Another blog about cancer but this time it’s me! It is more than 11.5 years since I added the final chapters to the “Wendy’s Army” blog, so this is very much Déjà Vu. I don’t know what I have done to upset those “upstairs” but they sure are making sure I get tested in this life. They managed to take Wendy, sadly, but they are not going to get me without the same degree of fight and determination shown by her.

As Wendy would be the first to acknowledge, these journeys cannot be undertaken alone. No cancer patient can undertake the trip without the support of loved ones.

As many will know, Kim and I being together at this stage in our lives is a story, which goes back over 30 years. Maybe we will tell that story at some point. So many have said we should!

I want to start this blog by acknowledging Kim, who is as up for the challenge of beating this cancer as I am. I simply could not do this without the caring nature of Kim, her inspiration to support me and lead the effort to get through this and we cannot wait for the day we will be told I’m in complete remission.

Kim is my rock! She is right here with me, and I couldn’t be a luckier man to be facing this with her. I love her with all my heart and, together, we are going to be successful in fighting and defeating this disease!

Before I start to tell the story and start the journey, let me explain why I have created this blog. There are three main reasons:

  1. Firstly, and most importantly, the majority of my family, my friends and my former colleagues are now aware of my diagnosis. Naturally, they all wish to be kept informed about my ongoing treatment and, rather than constantly tell people individually, it makes sense to keep everybody that wishes to be kept up to date informed on a consistent basis. When recounting detail, it is very easy to forget what you have said and to whom.
  2. I find it very cathartic. Telling the story gives me the chance to reflect on what is happening, rather than just repeating facts about the treatment and, just as importantly, some of those reading the blog will have people they know that have been on the same, or a similar journey. I think sharing experiences is so valuable and I have already found others that have been able to provide valuable insights and connections, which I will cover later.
  3. Thirdly, I’m not the only one undertaking this type of cancer journey. I have already met other men who have experienced prostate cancer and there will be many more in the future. My experience may just help other guys on their own journey. In Australia, over 24,000 men are diagnosed with prostate cancer each year, with 1 in 5 men at risk of being diagnosed before they turn 85. And it is far from being confined to Australia. In the UK, Prostate cancer is the most common cancer in men. More than 52,000 men are diagnosed with prostate cancer every year on average – that’s 144 men every day. Every 45 minutes one man dies from prostate cancer – that’s more than 12,000 men every year.
  • I have been feeling really good! I had my bloods checked on 10 October, the day before I was due to have my second session of chemo the following day. My white blood cell count had recovered sufficiently from the normal dip following the first chemo session. My day 10 bloods following session one were

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  • Since my last update: The meeting with Bill, the cancer nurse at Milton & Ulladulla Cancer Centre went well. I had had my bloods taken immediately before the meeting, so Bill did not have these available. However, he had seen the ones taken on day 10 (19 October) after the second chemo session on 11

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  • I had my pre chemo bloods taken on Tuesday 21 November. I had my fourth chemo session on Wednesday morning 22 November. The nursing team confirmed they had the blood results through and everything was looking good. They had obviously read Dr Gary Tinckner’s note from my review meeting with him on Friday 17 November

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  • The last three weeks, since the 4th chemo session, have been quite quiet on the health front, thankfully. My stomach has been a little less tolerant of the chemo, as expected. I’ve taken around 6-8 imodium to help, whereas I had previously only had to take a couple. The cancer nurse, when I discussed it

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  • On Wednesday 3 January I had my sixth, and optimistically my last, chemo session. My bloods, taken the day before, were all normal and the session proceeded exactly as previous ones, no issues. That night, however, I could not sleep at all. The phrase often used by the cancer team is “wired”. I could not

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  • Earlier today I had my scheduled appointments with Gary Tincknell, Medical Oncologist, and Stephen Chin Radiology Oncologist. I met Gary first and he had the blood results taken last Friday, 9 February which, sadly coincided with the 12th anniversary of Wendy’s passing. I could tell from his smile that the news was good! When measured

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  • It has now been just over 4 months since my last chemo session. It was suggested to me that it can take from six to 12 months for the chemicals to fully leave my system. From my perspective I feel this will be nearer the shorter end of that timeframe. I have been feeling really

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  • I had a telephone meeting with my medical oncologist, Gary Tinknell, on Tuesday last week. He remains very pleased with my progress. He had my blood results from late the previous week. They showed that my PSA remains at 0.01 and told me there are three levels within that score and I had dropped two,

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  • Having had my bloods taken last Friday, Kim and I visited my oncologist, Dr Gary Tinknell, this morning. My PSA score remains at 0.01, the lowest it can possibly be. He and we were delighted with the continued good news. It is not just the medication that is sustaining this momentum, but the holistic approach

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  • I have had a call with Gary Tincknell, my oncologist, following my latest set of blood tests. He said “cancer in your prostate is “undetectable”, which means the PSA score remains at 0.01 for the fourth consecutive quarter. There is no need to amend my medications, just keep doing what I have been. He will

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Space

I had my first consultation with Dr Kasherman on 22 August.

It was an almost three-hour journey to Dr Kasherman’s consultation rooms in Woollongong. Dr Nicholson had wanted me to see one of her colleagues, Dr Gary Tincknell, with whom she worked very closely, but he was away on holiday for 4 weeks, waiting any longer to start the treatment process was an ill-advised option.

I had seen the reports of both the biopsy tests and PET-CT scans online. There is a scale of “aggressiveness” for prostate cancer cells. It’s called the Gleason score and mine was 9/10, very aggressive, which helps explain why the cancer had spread as much as it had. The PET-CT scan showed, in glorious technicolour, the extent of the bone cancer. Dr Kasherman described my PET-CT scan results as me looking like the fairy lights on a Christmas tree. Fair, but not really what I had hoped for. The bone cancer was more widespread than I had feared.

It was Dr Kasherman’s job to identify the best course of treatment for me. He was very “matter of fact”. If I was to give him a little feedback, I’d no doubt suggest a slightly less “intense” style. Kim could do much to help him in that regard!

The first drug would be by way of an injection. It’s called Degaralix and is designed to treat prostate cancer that is locally advanced or metastatic. Degarelix is a treatment for hormone dependent prostate cancer. Hormone dependent means that the cancer cells need a hormone in order to grow. It is given by injection under the skin (subcutaneously), normally the stomach. Dr Kasherman gave me a script for the drug, and I ordered it from my local pharmacist.

I made an appointment with the nurse at our local medical centre for the Friday of that week, 25 August.

When I arrived with my prescription I was advised that the nurse was running very late and asked if I would be OK if one of the doctors administered it. I figured that the doctor is at least as competent as the nurse.

I saw Dr Emma Thompson, a very friendly senior member of the practice team. I had been told that I would have 200ml of the drug. The syringes come in 120ml and 80ml doses. Dr Thompson read through all the instructions and started with the first injection, which I hardly felt. She then used the second syringe to inject a second dose. I didn’t give it much thought, but she then gave me a third injection – who am I to challenge the professionals!

Big mistake! I left the surgery feeling quite positive, it had gone well, very little discomfort.

I just got to the car and opened the door when the phone rang. It identified the caller as Milton Family Medical Practice, our local medical centre. It was Dr Thompson, in somewhat of a fluster, and she asked me to immediately return to the surgery to see her. Somewhat embarrassed, Dr Thompson admitted she had “overdosed” me! The pharmacist had provided two syringes of the120ml and one of 80ml. She had not noticed this and had proceeded to give me all three doses, a total of 320ml instead of the prescribed 200ml.

She had immediately called Dr Kasherman, the prescribing oncologist, to admit the error and seek his guidance on what she should do. Apparently, he said the only effect would be that the side effects of the drug may be more pronounced as a result. I assured Dr Thompson that I felt fine – I was still alive! She said she wouldn’t sleep over the weekend and would call me first thing on Monday to make sure I was OK and to immediately go to our local A&E in the event of any problems.

To be honest, I had no side effects and would never have known I had the drug apart from the slight lumps under the skin of my stomach! Dr Thompson duly called, and I reassured her that all was well. Indeed, the pains in my joints and some bones had gone so the extra seemed to have done a good job.

The second drug is Darolutamide and is taken in tablet form, which would no doubt be of great relief to Dr Thompson!

It is a type of chemotherapy and an antineoplastic (anticancer) drug that belongs to a class called antiandrogens. It works by counteracting the effects of testosterone, the primary sex hormone produced by males and used by the prostate. It is important to understand that darolutamide is not a traditional chemotherapy drug and has a different way of working. It works by blocking hormones which stops the cancer cells growing and spreading.

I started taking darolutamide, which supports the Degarelix injections, two weeks after the injections, on Friday 8 September. I take two tablets in morning and evening, and I think I will be on these throughout my remaining life.

The third treatment, at this stage, at least, is Docetaxel, which is definitely a type of chemotherapy. This treatment is repeated in three-week cycles and, in my case, for a total of six sessions. I had the first “dose” on 21 September.

At the end of my consultation with Dr Kasherman he asked for a further CT scan, to look at my spine in closer detail. The scan was done on 24 August. I had a review meeting with Dr Nicholson on 25 August, the morning before the “injections” with Dr Thompson. Basically, Dr Nicholson had seen Dr Kasherman’s report of our consultation and agreed with the “Christmas tree” analogy. She seemed to agree with the drug regime, but I detected some disquiet, which neither Kim or I could define. Let’s put it like this – Dr Nicholson was keen for me to see Dr Tincknell for review – you will recall he was a close colleague of Dr Nicholson but was on holiday.