My Challenge to defeat prostate and bone cancer

First Published 30 September 2023

Well, here I am again. Another blog about cancer but this time it’s me! It is more than 11.5 years since I added the final chapters to the “Wendy’s Army” blog, so this is very much Déjà Vu. I don’t know what I have done to upset those “upstairs” but they sure are making sure I get tested in this life. They managed to take Wendy, sadly, but they are not going to get me without the same degree of fight and determination shown by her.

As Wendy would be the first to acknowledge, these journeys cannot be undertaken alone. No cancer patient can undertake the trip without the support of loved ones.

As many will know, Kim and I being together at this stage in our lives is a story, which goes back over 30 years. Maybe we will tell that story at some point. So many have said we should!

I want to start this blog by acknowledging Kim, who is as up for the challenge of beating this cancer as I am. I simply could not do this without the caring nature of Kim, her inspiration to support me and lead the effort to get through this and we cannot wait for the day we will be told I’m in complete remission.

Kim is my rock! She is right here with me, and I couldn’t be a luckier man to be facing this with her. I love her with all my heart and, together, we are going to be successful in fighting and defeating this disease!

Before I start to tell the story and start the journey, let me explain why I have created this blog. There are three main reasons:

  1. Firstly, and most importantly, the majority of my family, my friends and my former colleagues are now aware of my diagnosis. Naturally, they all wish to be kept informed about my ongoing treatment and, rather than constantly tell people individually, it makes sense to keep everybody that wishes to be kept up to date informed on a consistent basis. When recounting detail, it is very easy to forget what you have said and to whom.
  2. I find it very cathartic. Telling the story gives me the chance to reflect on what is happening, rather than just repeating facts about the treatment and, just as importantly, some of those reading the blog will have people they know that have been on the same, or a similar journey. I think sharing experiences is so valuable and I have already found others that have been able to provide valuable insights and connections, which I will cover later.
  3. Thirdly, I’m not the only one undertaking this type of cancer journey. I have already met other men who have experienced prostate cancer and there will be many more in the future. My experience may just help other guys on their own journey. In Australia, over 24,000 men are diagnosed with prostate cancer each year, with 1 in 5 men at risk of being diagnosed before they turn 85. And it is far from being confined to Australia. In the UK, Prostate cancer is the most common cancer in men. More than 52,000 men are diagnosed with prostate cancer every year on average – that’s 144 men every day. Every 45 minutes one man dies from prostate cancer – that’s more than 12,000 men every year.
  • I have been feeling really good! I had my bloods checked on 10 October, the day before I was due to have my second session of chemo the following day. My white blood cell count had recovered sufficiently from the normal dip following the first chemo session. My day 10 bloods following session one were

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  • Since my last update: The meeting with Bill, the cancer nurse at Milton & Ulladulla Cancer Centre went well. I had had my bloods taken immediately before the meeting, so Bill did not have these available. However, he had seen the ones taken on day 10 (19 October) after the second chemo session on 11

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  • I had my pre chemo bloods taken on Tuesday 21 November. I had my fourth chemo session on Wednesday morning 22 November. The nursing team confirmed they had the blood results through and everything was looking good. They had obviously read Dr Gary Tinckner’s note from my review meeting with him on Friday 17 November

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  • The last three weeks, since the 4th chemo session, have been quite quiet on the health front, thankfully. My stomach has been a little less tolerant of the chemo, as expected. I’ve taken around 6-8 imodium to help, whereas I had previously only had to take a couple. The cancer nurse, when I discussed it

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  • On Wednesday 3 January I had my sixth, and optimistically my last, chemo session. My bloods, taken the day before, were all normal and the session proceeded exactly as previous ones, no issues. That night, however, I could not sleep at all. The phrase often used by the cancer team is “wired”. I could not

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  • Earlier today I had my scheduled appointments with Gary Tincknell, Medical Oncologist, and Stephen Chin Radiology Oncologist. I met Gary first and he had the blood results taken last Friday, 9 February which, sadly coincided with the 12th anniversary of Wendy’s passing. I could tell from his smile that the news was good! When measured

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  • It has now been just over 4 months since my last chemo session. It was suggested to me that it can take from six to 12 months for the chemicals to fully leave my system. From my perspective I feel this will be nearer the shorter end of that timeframe. I have been feeling really

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  • I had a telephone meeting with my medical oncologist, Gary Tinknell, on Tuesday last week. He remains very pleased with my progress. He had my blood results from late the previous week. They showed that my PSA remains at 0.01 and told me there are three levels within that score and I had dropped two,

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  • Having had my bloods taken last Friday, Kim and I visited my oncologist, Dr Gary Tinknell, this morning. My PSA score remains at 0.01, the lowest it can possibly be. He and we were delighted with the continued good news. It is not just the medication that is sustaining this momentum, but the holistic approach

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  • I have had a call with Gary Tincknell, my oncologist, following my latest set of blood tests. He said “cancer in your prostate is “undetectable”, which means the PSA score remains at 0.01 for the fourth consecutive quarter. There is no need to amend my medications, just keep doing what I have been. He will

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Space

On Wednesday 3 January I had my sixth, and optimistically my last, chemo session. My bloods, taken the day before, were all normal and the session proceeded exactly as previous ones, no issues.

That night, however, I could not sleep at all. The phrase often used by the cancer team is “wired”. I could not relax, and it felt as though I had been plugged into an electrical circuit that was connecting with my muscles every few minutes. I just couldn’t stay still.

I follow the BBL 20 over cricket tournament (Big Bash League) here in Australia so, having gone to bed around 10pm, I got up again around 11 pm to watch the live match from Perth, which is 3 hours behind our time zone here on the east coast. That kept me occupied until around 1 am, when I tried going back for a sleep. No such luck, but I did manage to get some rest.

The following day I was, unsurprisingly, very tired, not only from the lack of sleep but the effects of the chemo. I took some Melatonin and went to lay down on the bed around 3pm. Kim came to wake me at 5pm, otherwise I would have been there and screwed my normal sleep pattern later that night. I felt so much better, and things returned to normal.

For the next few days, I felt very low on energy. I cut the grass, which is just a case of driving the lawn tractor. But when it came to “strimming”, which normally takes about 45 mins, I got halfway through and had to concede defeat. I completed the job the following day. Since then, things have improved a little.

I had a conversation with Sarah, my cancer nurse, on Monday 8 January, on her return from the Xmas break. Ostensibly, I was seeking guidance on what I need do now that chemo has finished and ahead of upcoming oncologist meetings. I relayed the above details, which she was not at all surprised about. It seems, to date, I have been let off lightly by comparison to other patients on a similar regime. She advised me there are two aspects to carefully consider:

Firstly, I’m 72 (nearly 73!), not in my 40s or 50s. I cannot expect to be able to carry on as though I was a much younger chap. I’ve done well, but I need to lower my expectations and take things a little more easily.

Secondly, I have just had 6 sessions of very invasive chemo. It has a cumulative effect. The drug is well embedded in my bone marrow, and this considerably slows down it’s ability to create new blood cells, which reduces my immunity and makes me have less energy. Her other patients on this regime report not being back to “normal” for 6-12 months after treatment finishes.

That told me!

Since then, I have felt better as the days pass, but I have heeded the advice and “chilled” a bit, taking regular breaks when I feel the need.

Up next are meetings with my oncologists. I see Gary Tincknell, my medical oncologist, followed by meeting Steven Chin, my radiology oncologist immediately after, on 13 February. My bloods will be tested on 9 February to provide key data for those meetings. I asked Sarah if I should be having any scans. “Not at this stage”, was her response, which surprised me a little.

Her rationale, however, made a lot of sense. Firstly, my PSA score will, based on most recent scores, enable Gary Tincknell to know just how well the chemo and hormone treatments have worked. The most recent PSA was 0.09, almost undetectable. If the PSA score remains like that then he will probably only want to retest in, say, 3 months, maybe longer. The PSA score is the most important indicator for Gary.

Steven Chin will not require any scans either. The fact I have not had any bone pains, since my treatment started, is the best indication the treatment is working. It will now be up to me to “shout” if anything changes.

This is all subject to the reviews with Gary and Steven, but Sarah said, “so far so good, go and enjoy your life”!

If all of this is confirmed on 13 February, the timing could not be better. Kim and I have a cruise booked, leaving Sydney on Cunard’s Queen Elizabeth, on 20 February, for Fiji, Vanuatu, and New Caledonia. I couldn’t think of a better way to celebrate the good news.

Fingers crossed, but I think I may be coming out the other end of this little set back in my life!

Our lovely neighbours at the Bawley Vale Winery, Marg & Chris, gave us a fig tree for Xmas. Kim and I decided to plant it to mark my final chemo session, on 3 January. Evidence below, with my “assistant” Maisie, in the background!

I hope to see it grow very substantially, along with my hair!