My Challenge to defeat prostate and bone cancer

First Published 30 September 2023

Well, here I am again. Another blog about cancer but this time it’s me! It is more than 11.5 years since I added the final chapters to the “Wendy’s Army” blog, so this is very much Déjà Vu. I don’t know what I have done to upset those “upstairs” but they sure are making sure I get tested in this life. They managed to take Wendy, sadly, but they are not going to get me without the same degree of fight and determination shown by her.

As Wendy would be the first to acknowledge, these journeys cannot be undertaken alone. No cancer patient can undertake the trip without the support of loved ones.

As many will know, Kim and I being together at this stage in our lives is a story, which goes back over 30 years. Maybe we will tell that story at some point. So many have said we should!

I want to start this blog by acknowledging Kim, who is as up for the challenge of beating this cancer as I am. I simply could not do this without the caring nature of Kim, her inspiration to support me and lead the effort to get through this and we cannot wait for the day we will be told I’m in complete remission.

Kim is my rock! She is right here with me, and I couldn’t be a luckier man to be facing this with her. I love her with all my heart and, together, we are going to be successful in fighting and defeating this disease!

Before I start to tell the story and start the journey, let me explain why I have created this blog. There are three main reasons:

  1. Firstly, and most importantly, the majority of my family, my friends and my former colleagues are now aware of my diagnosis. Naturally, they all wish to be kept informed about my ongoing treatment and, rather than constantly tell people individually, it makes sense to keep everybody that wishes to be kept up to date informed on a consistent basis. When recounting detail, it is very easy to forget what you have said and to whom.
  2. I find it very cathartic. Telling the story gives me the chance to reflect on what is happening, rather than just repeating facts about the treatment and, just as importantly, some of those reading the blog will have people they know that have been on the same, or a similar journey. I think sharing experiences is so valuable and I have already found others that have been able to provide valuable insights and connections, which I will cover later.
  3. Thirdly, I’m not the only one undertaking this type of cancer journey. I have already met other men who have experienced prostate cancer and there will be many more in the future. My experience may just help other guys on their own journey. In Australia, over 24,000 men are diagnosed with prostate cancer each year, with 1 in 5 men at risk of being diagnosed before they turn 85. And it is far from being confined to Australia. In the UK, Prostate cancer is the most common cancer in men. More than 52,000 men are diagnosed with prostate cancer every year on average – that’s 144 men every day. Every 45 minutes one man dies from prostate cancer – that’s more than 12,000 men every year.
  • It’s a long story! It started on Friday 11th March 2022! Around that time, Australia had experienced huge rainfall volumes. I think in Bawley Point, where we live, there was circa 250ml in a few months. This was following the bush fires in early 2020. They say this is a country of extremes and that

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  • Let’s remember that Kim and I have only been together for 2 years. We have been so happy in our retirement in our new home and surroundings with our animals and those all around us. The first day we moved in a King Parrot came to see us. We started to feed it sunflower seeds

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  • Ahead of the initial meeting I was asked to attend the radiology unit the very next day for a full body CT scan, which would then be available to Dr Nicholson. This was undertaken on Friday 4 August. On Monday 7 August I had a second meeting with Dr Burt, who had the CT scan

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  • Well, if I hadn’t hit that pothole, and if I hadn’t buckled the wheel, I would not have taken it for repair and a second new tyre. I would not, thereafter, be faced with trying to get the wheel back on the car and., therefore, would not have fractured my pubic ramus. Without the fracture

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  • I had my first consultation with Dr Kasherman on 22 August. It was an almost three-hour journey to Dr Kasherman’s consultation rooms in Woollongong. Dr Nicholson had wanted me to see one of her colleagues, Dr Gary Tincknell, with whom she worked very closely, but he was away on holiday for 4 weeks, waiting any

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  • As you would expect, Kim and I had many conversations about the diagnosis. We had moved into our beautiful home just under two years ago, after I returned to Australia. I had returned to the UK to sell my home, gain a visa, and return asap to Australia. But I left on the last day

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  • Following my meeting with Dr Helen Nicholson, the prostate oncologist, she arranged for me to see Dr Steven Chin, a radiology oncologist, with whom she also works close, and with Dr Tincknell. They are part of the same multidisciplinary team that meets weekly to review their cases. We met on Wednesday 30 August. At the

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  • As we sit here today, 30 September, this is where I have reached with my treatments:

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  • I had my Day 10 bloods taken on 29 Sept. I’m seeing the cancer nurse at the clinic where I have my chemo administered on 3 October. He will have the 10-day blood tests. I have just arranged to see an acupuncturist on 4 October. Acupuncture is very good for trying to rebalance the body

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  • A week ago today, Saturday 30 September, our dream started to unfold. We had agreed that rehoming Kim’s horses was the right thing to do, as was moving home. We got a call from the lady that had agreed to take our beautiful 33 year-old Palomino pony, Kirra. I think it was the first time

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Space

Ahead of the initial meeting I was asked to attend the radiology unit the very next day for a full body CT scan, which would then be available to Dr Nicholson. This was undertaken on Friday 4 August.

On Monday 7 August I had a second meeting with Dr Burt, who had the CT scan results. Kim was with me. The scan confirmed the original MRI data and being a full body scan, revealed that in addition to the previous MRI revelations and identification of disease, additionally, I had bone cancer in some of my ribs, more extensively in my spine and a couple of other areas.

Kim and I met Dr Helen Nicholson on Tuesday 8 August. She had all the scan results. There was no doubt I had stage 4 bone cancer. The only thing to confirm was whether the primary cancer was in my prostate. Dr Nicholson, whilst Kim left the room, carried out a digital examination of my prostate and confirmed an area, around 25%, was hard, which indicated cancer. Interestingly, Dr Nicholson could see from a PSA test, I was only at level 13. She had expected this to be much higher, but it’s not unusual to be that low in some cases. It was still higher than it should be. She mentioned she had seen some patients with confirmed prostate cancer with a PSA score of 3 and had also seen them in the thousands.

The next step was to carry out a biopsy of the prostate. This would determine the aggressiveness of the cancer, which would in turn determine the relevant treatment journey I would inevitably be on going forward.

I couldn’t believe it when Dr Nicholson said she had an operating theatre space the following day. She does all her surgical work on Wednesdays. She was putting me on the list for the first operation! Can you imagine that on the NHS, even private care in the UK? Me neither!

Let me be clear, I do not have private medical insurance. Dr Nicholson has a limited number of opportunities to include non private patients in her schedule, which is what she chose to do. The health system here in Australia is known as Medicare. It’s the equivalent of the NHS, but if you go private Medicare cover costs up to a point, when the patient then has to contribute. When you read on, bear in mind my only outlay has been a little over $300 for everything that has been done for me.

I had to be at Shoalhaven Private Hospital at 11am the following day, 9 August. The prostate biopsy, undertaken through the perineum, was done under a general anaesthetic. It takes 10/15 minutes and removes tissue from all parts of the prostate, which is only the size of a walnut. I came round from the procedure without any problems, and it wasn’t long before Kim and I set off home. We were back by 15.30.

The collected tissue would be sent to a pathology lab for analysis. In the interim I was to have another scan, which was arranged for Tuesday 15 August. This would be a PET-CT scan because the MRI was very localised to the area of the pain in my hip. To save you looking this up on Google, a Positron Emission Tomography and Computed Tomography scan. Before the PET-CT scan, you get an injection of a small amount of a radioactive sugar called fluorodeoxyglucose-18. This substance is sometimes called FGD-18, radioactive glucose, or a tracer. The cells in your body absorb sugar. Areas that use more energy pick up more of the sugar. Cancer cells tend to use more energy than healthy cells. The PET scan shows where the radioactive tracer is in your body.

At Dr Nicholson’s request, the results of the biopsy and the PET-CT scan were sent to Dr Laurence Kasherman, a medical oncologist as well as to herself for review.

However, in the interim, Kim had started researching prostate and bone cancer. As I mentioned earlier, there is so much value in sharing information – you will learn so much from the experiences of others. It’s so important.

Kim has a good friend and former work colleague, Sue McDonnell. I had met Sue when she came to stay with us some months earlier. Kim had shared the bad news with Sue. Sue knew of a friend of hers Justyna Bilski, who had a friend, Oxana Chekoeva, who had been diagnosed with cancer some 18 months earlier and despite predictions, had defeated it – she was clear. Justyna spoke to Oxana to discuss her regime and it became very clear to Kim and I that we needed a more holistic approach to my treatment – the medical route alone wasn’t going to be the answer for me, or indeed perhaps for any cancer patient. Justyna produced a prostate cancer map and program of core off label drugs and supplements. The map she produced was identical to one produced by Jane McLelland in her book “how to Starve Cancer”. Jane beat cervical, lung, and blood cancers using the missing link to defeat cancer: starving it. I immediately ordered the book.

According to doctors and cancer statistics, Jane should have lived only about 12 weeks after receiving her diagnosis of stage IV cancer (the same stage as mine). But she refused to go down without a fight. Taking matters into her own hands, she dug through medical journals, poring over long-forgotten research and overlooked evidence, looking for clues to overcoming her cancer.

Along the way, she discovered a missing link to defeating cancer: starving it. Based on this concept, she developed her own cancer-starving cocktail—utilizing diet, supplements, and off-label drugs—that proved to be effective alongside the traditional approaches of chemo and radiotherapy.

Now, 18 years later, after suffering from cervical cancer, secondary lung cancer, and treatment-related myelodysplasia, she is alive, well, and cancer-free. And she has made it her life’s mission to help other cancer patients achieve the same results.

Kim and I thought this was just what we needed ahead of the meeting with the medical oncologist, and we prepared materials to enable us to discuss an holistic approach to my treatment. There was sufficient evidence to suggest that modern drugs alone may not be the only way to achieve a successful outcome.