My Challenge to defeat prostate and bone cancer

First Published 30 September 2023

Well, here I am again. Another blog about cancer but this time it’s me! It is more than 11.5 years since I added the final chapters to the “Wendy’s Army” blog, so this is very much Déjà Vu. I don’t know what I have done to upset those “upstairs” but they sure are making sure I get tested in this life. They managed to take Wendy, sadly, but they are not going to get me without the same degree of fight and determination shown by her.

As Wendy would be the first to acknowledge, these journeys cannot be undertaken alone. No cancer patient can undertake the trip without the support of loved ones.

As many will know, Kim and I being together at this stage in our lives is a story, which goes back over 30 years. Maybe we will tell that story at some point. So many have said we should!

I want to start this blog by acknowledging Kim, who is as up for the challenge of beating this cancer as I am. I simply could not do this without the caring nature of Kim, her inspiration to support me and lead the effort to get through this and we cannot wait for the day we will be told I’m in complete remission.

Kim is my rock! She is right here with me, and I couldn’t be a luckier man to be facing this with her. I love her with all my heart and, together, we are going to be successful in fighting and defeating this disease!

Before I start to tell the story and start the journey, let me explain why I have created this blog. There are three main reasons:

  1. Firstly, and most importantly, the majority of my family, my friends and my former colleagues are now aware of my diagnosis. Naturally, they all wish to be kept informed about my ongoing treatment and, rather than constantly tell people individually, it makes sense to keep everybody that wishes to be kept up to date informed on a consistent basis. When recounting detail, it is very easy to forget what you have said and to whom.
  2. I find it very cathartic. Telling the story gives me the chance to reflect on what is happening, rather than just repeating facts about the treatment and, just as importantly, some of those reading the blog will have people they know that have been on the same, or a similar journey. I think sharing experiences is so valuable and I have already found others that have been able to provide valuable insights and connections, which I will cover later.
  3. Thirdly, I’m not the only one undertaking this type of cancer journey. I have already met other men who have experienced prostate cancer and there will be many more in the future. My experience may just help other guys on their own journey. In Australia, over 24,000 men are diagnosed with prostate cancer each year, with 1 in 5 men at risk of being diagnosed before they turn 85. And it is far from being confined to Australia. In the UK, Prostate cancer is the most common cancer in men. More than 52,000 men are diagnosed with prostate cancer every year on average – that’s 144 men every day. Every 45 minutes one man dies from prostate cancer – that’s more than 12,000 men every year.
  • It’s a long story! It started on Friday 11th March 2022! Around that time, Australia had experienced huge rainfall volumes. I think in Bawley Point, where we live, there was circa 250ml in a few months. This was following the bush fires in early 2020. They say this is a country of extremes and that

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  • Let’s remember that Kim and I have only been together for 2 years. We have been so happy in our retirement in our new home and surroundings with our animals and those all around us. The first day we moved in a King Parrot came to see us. We started to feed it sunflower seeds

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  • Ahead of the initial meeting I was asked to attend the radiology unit the very next day for a full body CT scan, which would then be available to Dr Nicholson. This was undertaken on Friday 4 August. On Monday 7 August I had a second meeting with Dr Burt, who had the CT scan

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  • Well, if I hadn’t hit that pothole, and if I hadn’t buckled the wheel, I would not have taken it for repair and a second new tyre. I would not, thereafter, be faced with trying to get the wheel back on the car and., therefore, would not have fractured my pubic ramus. Without the fracture

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  • I had my first consultation with Dr Kasherman on 22 August. It was an almost three-hour journey to Dr Kasherman’s consultation rooms in Woollongong. Dr Nicholson had wanted me to see one of her colleagues, Dr Gary Tincknell, with whom she worked very closely, but he was away on holiday for 4 weeks, waiting any

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  • As you would expect, Kim and I had many conversations about the diagnosis. We had moved into our beautiful home just under two years ago, after I returned to Australia. I had returned to the UK to sell my home, gain a visa, and return asap to Australia. But I left on the last day

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  • Following my meeting with Dr Helen Nicholson, the prostate oncologist, she arranged for me to see Dr Steven Chin, a radiology oncologist, with whom she also works close, and with Dr Tincknell. They are part of the same multidisciplinary team that meets weekly to review their cases. We met on Wednesday 30 August. At the

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  • As we sit here today, 30 September, this is where I have reached with my treatments:

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  • I had my Day 10 bloods taken on 29 Sept. I’m seeing the cancer nurse at the clinic where I have my chemo administered on 3 October. He will have the 10-day blood tests. I have just arranged to see an acupuncturist on 4 October. Acupuncture is very good for trying to rebalance the body

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  • A week ago today, Saturday 30 September, our dream started to unfold. We had agreed that rehoming Kim’s horses was the right thing to do, as was moving home. We got a call from the lady that had agreed to take our beautiful 33 year-old Palomino pony, Kirra. I think it was the first time

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Space

I had my first consultation with Dr Kasherman on 22 August.

It was an almost three-hour journey to Dr Kasherman’s consultation rooms in Woollongong. Dr Nicholson had wanted me to see one of her colleagues, Dr Gary Tincknell, with whom she worked very closely, but he was away on holiday for 4 weeks, waiting any longer to start the treatment process was an ill-advised option.

I had seen the reports of both the biopsy tests and PET-CT scans online. There is a scale of “aggressiveness” for prostate cancer cells. It’s called the Gleason score and mine was 9/10, very aggressive, which helps explain why the cancer had spread as much as it had. The PET-CT scan showed, in glorious technicolour, the extent of the bone cancer. Dr Kasherman described my PET-CT scan results as me looking like the fairy lights on a Christmas tree. Fair, but not really what I had hoped for. The bone cancer was more widespread than I had feared.

It was Dr Kasherman’s job to identify the best course of treatment for me. He was very “matter of fact”. If I was to give him a little feedback, I’d no doubt suggest a slightly less “intense” style. Kim could do much to help him in that regard!

The first drug would be by way of an injection. It’s called Degaralix and is designed to treat prostate cancer that is locally advanced or metastatic. Degarelix is a treatment for hormone dependent prostate cancer. Hormone dependent means that the cancer cells need a hormone in order to grow. It is given by injection under the skin (subcutaneously), normally the stomach. Dr Kasherman gave me a script for the drug, and I ordered it from my local pharmacist.

I made an appointment with the nurse at our local medical centre for the Friday of that week, 25 August.

When I arrived with my prescription I was advised that the nurse was running very late and asked if I would be OK if one of the doctors administered it. I figured that the doctor is at least as competent as the nurse.

I saw Dr Emma Thompson, a very friendly senior member of the practice team. I had been told that I would have 200ml of the drug. The syringes come in 120ml and 80ml doses. Dr Thompson read through all the instructions and started with the first injection, which I hardly felt. She then used the second syringe to inject a second dose. I didn’t give it much thought, but she then gave me a third injection – who am I to challenge the professionals!

Big mistake! I left the surgery feeling quite positive, it had gone well, very little discomfort.

I just got to the car and opened the door when the phone rang. It identified the caller as Milton Family Medical Practice, our local medical centre. It was Dr Thompson, in somewhat of a fluster, and she asked me to immediately return to the surgery to see her. Somewhat embarrassed, Dr Thompson admitted she had “overdosed” me! The pharmacist had provided two syringes of the120ml and one of 80ml. She had not noticed this and had proceeded to give me all three doses, a total of 320ml instead of the prescribed 200ml.

She had immediately called Dr Kasherman, the prescribing oncologist, to admit the error and seek his guidance on what she should do. Apparently, he said the only effect would be that the side effects of the drug may be more pronounced as a result. I assured Dr Thompson that I felt fine – I was still alive! She said she wouldn’t sleep over the weekend and would call me first thing on Monday to make sure I was OK and to immediately go to our local A&E in the event of any problems.

To be honest, I had no side effects and would never have known I had the drug apart from the slight lumps under the skin of my stomach! Dr Thompson duly called, and I reassured her that all was well. Indeed, the pains in my joints and some bones had gone so the extra seemed to have done a good job.

The second drug is Darolutamide and is taken in tablet form, which would no doubt be of great relief to Dr Thompson!

It is a type of chemotherapy and an antineoplastic (anticancer) drug that belongs to a class called antiandrogens. It works by counteracting the effects of testosterone, the primary sex hormone produced by males and used by the prostate. It is important to understand that darolutamide is not a traditional chemotherapy drug and has a different way of working. It works by blocking hormones which stops the cancer cells growing and spreading.

I started taking darolutamide, which supports the Degarelix injections, two weeks after the injections, on Friday 8 September. I take two tablets in morning and evening, and I think I will be on these throughout my remaining life.

The third treatment, at this stage, at least, is Docetaxel, which is definitely a type of chemotherapy. This treatment is repeated in three-week cycles and, in my case, for a total of six sessions. I had the first “dose” on 21 September.

At the end of my consultation with Dr Kasherman he asked for a further CT scan, to look at my spine in closer detail. The scan was done on 24 August. I had a review meeting with Dr Nicholson on 25 August, the morning before the “injections” with Dr Thompson. Basically, Dr Nicholson had seen Dr Kasherman’s report of our consultation and agreed with the “Christmas tree” analogy. She seemed to agree with the drug regime, but I detected some disquiet, which neither Kim or I could define. Let’s put it like this – Dr Nicholson was keen for me to see Dr Tincknell for review – you will recall he was a close colleague of Dr Nicholson but was on holiday.