My Challenge to defeat prostate and bone cancer

First Published 30 September 2023

Well, here I am again. Another blog about cancer but this time it’s me! It is more than 11.5 years since I added the final chapters to the “Wendy’s Army” blog, so this is very much Déjà Vu. I don’t know what I have done to upset those “upstairs” but they sure are making sure I get tested in this life. They managed to take Wendy, sadly, but they are not going to get me without the same degree of fight and determination shown by her.

As Wendy would be the first to acknowledge, these journeys cannot be undertaken alone. No cancer patient can undertake the trip without the support of loved ones.

As many will know, Kim and I being together at this stage in our lives is a story, which goes back over 30 years. Maybe we will tell that story at some point. So many have said we should!

I want to start this blog by acknowledging Kim, who is as up for the challenge of beating this cancer as I am. I simply could not do this without the caring nature of Kim, her inspiration to support me and lead the effort to get through this and we cannot wait for the day we will be told I’m in complete remission.

Kim is my rock! She is right here with me, and I couldn’t be a luckier man to be facing this with her. I love her with all my heart and, together, we are going to be successful in fighting and defeating this disease!

Before I start to tell the story and start the journey, let me explain why I have created this blog. There are three main reasons:

  1. Firstly, and most importantly, the majority of my family, my friends and my former colleagues are now aware of my diagnosis. Naturally, they all wish to be kept informed about my ongoing treatment and, rather than constantly tell people individually, it makes sense to keep everybody that wishes to be kept up to date informed on a consistent basis. When recounting detail, it is very easy to forget what you have said and to whom.
  2. I find it very cathartic. Telling the story gives me the chance to reflect on what is happening, rather than just repeating facts about the treatment and, just as importantly, some of those reading the blog will have people they know that have been on the same, or a similar journey. I think sharing experiences is so valuable and I have already found others that have been able to provide valuable insights and connections, which I will cover later.
  3. Thirdly, I’m not the only one undertaking this type of cancer journey. I have already met other men who have experienced prostate cancer and there will be many more in the future. My experience may just help other guys on their own journey. In Australia, over 24,000 men are diagnosed with prostate cancer each year, with 1 in 5 men at risk of being diagnosed before they turn 85. And it is far from being confined to Australia. In the UK, Prostate cancer is the most common cancer in men. More than 52,000 men are diagnosed with prostate cancer every year on average – that’s 144 men every day. Every 45 minutes one man dies from prostate cancer – that’s more than 12,000 men every year.
  • It’s a long story! It started on Friday 11th March 2022! Around that time, Australia had experienced huge rainfall volumes. I think in Bawley Point, where we live, there was circa 250ml in a few months. This was following the bush fires in early 2020. They say this is a country of extremes and that

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  • Let’s remember that Kim and I have only been together for 2 years. We have been so happy in our retirement in our new home and surroundings with our animals and those all around us. The first day we moved in a King Parrot came to see us. We started to feed it sunflower seeds

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  • Ahead of the initial meeting I was asked to attend the radiology unit the very next day for a full body CT scan, which would then be available to Dr Nicholson. This was undertaken on Friday 4 August. On Monday 7 August I had a second meeting with Dr Burt, who had the CT scan

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  • Well, if I hadn’t hit that pothole, and if I hadn’t buckled the wheel, I would not have taken it for repair and a second new tyre. I would not, thereafter, be faced with trying to get the wheel back on the car and., therefore, would not have fractured my pubic ramus. Without the fracture

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  • I had my first consultation with Dr Kasherman on 22 August. It was an almost three-hour journey to Dr Kasherman’s consultation rooms in Woollongong. Dr Nicholson had wanted me to see one of her colleagues, Dr Gary Tincknell, with whom she worked very closely, but he was away on holiday for 4 weeks, waiting any

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  • As you would expect, Kim and I had many conversations about the diagnosis. We had moved into our beautiful home just under two years ago, after I returned to Australia. I had returned to the UK to sell my home, gain a visa, and return asap to Australia. But I left on the last day

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  • Following my meeting with Dr Helen Nicholson, the prostate oncologist, she arranged for me to see Dr Steven Chin, a radiology oncologist, with whom she also works close, and with Dr Tincknell. They are part of the same multidisciplinary team that meets weekly to review their cases. We met on Wednesday 30 August. At the

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  • As we sit here today, 30 September, this is where I have reached with my treatments:

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  • I had my Day 10 bloods taken on 29 Sept. I’m seeing the cancer nurse at the clinic where I have my chemo administered on 3 October. He will have the 10-day blood tests. I have just arranged to see an acupuncturist on 4 October. Acupuncture is very good for trying to rebalance the body

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  • A week ago today, Saturday 30 September, our dream started to unfold. We had agreed that rehoming Kim’s horses was the right thing to do, as was moving home. We got a call from the lady that had agreed to take our beautiful 33 year-old Palomino pony, Kirra. I think it was the first time

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Space

On Wednesday 3 January I had my sixth, and optimistically my last, chemo session. My bloods, taken the day before, were all normal and the session proceeded exactly as previous ones, no issues.

That night, however, I could not sleep at all. The phrase often used by the cancer team is “wired”. I could not relax, and it felt as though I had been plugged into an electrical circuit that was connecting with my muscles every few minutes. I just couldn’t stay still.

I follow the BBL 20 over cricket tournament (Big Bash League) here in Australia so, having gone to bed around 10pm, I got up again around 11 pm to watch the live match from Perth, which is 3 hours behind our time zone here on the east coast. That kept me occupied until around 1 am, when I tried going back for a sleep. No such luck, but I did manage to get some rest.

The following day I was, unsurprisingly, very tired, not only from the lack of sleep but the effects of the chemo. I took some Melatonin and went to lay down on the bed around 3pm. Kim came to wake me at 5pm, otherwise I would have been there and screwed my normal sleep pattern later that night. I felt so much better, and things returned to normal.

For the next few days, I felt very low on energy. I cut the grass, which is just a case of driving the lawn tractor. But when it came to “strimming”, which normally takes about 45 mins, I got halfway through and had to concede defeat. I completed the job the following day. Since then, things have improved a little.

I had a conversation with Sarah, my cancer nurse, on Monday 8 January, on her return from the Xmas break. Ostensibly, I was seeking guidance on what I need do now that chemo has finished and ahead of upcoming oncologist meetings. I relayed the above details, which she was not at all surprised about. It seems, to date, I have been let off lightly by comparison to other patients on a similar regime. She advised me there are two aspects to carefully consider:

Firstly, I’m 72 (nearly 73!), not in my 40s or 50s. I cannot expect to be able to carry on as though I was a much younger chap. I’ve done well, but I need to lower my expectations and take things a little more easily.

Secondly, I have just had 6 sessions of very invasive chemo. It has a cumulative effect. The drug is well embedded in my bone marrow, and this considerably slows down it’s ability to create new blood cells, which reduces my immunity and makes me have less energy. Her other patients on this regime report not being back to “normal” for 6-12 months after treatment finishes.

That told me!

Since then, I have felt better as the days pass, but I have heeded the advice and “chilled” a bit, taking regular breaks when I feel the need.

Up next are meetings with my oncologists. I see Gary Tincknell, my medical oncologist, followed by meeting Steven Chin, my radiology oncologist immediately after, on 13 February. My bloods will be tested on 9 February to provide key data for those meetings. I asked Sarah if I should be having any scans. “Not at this stage”, was her response, which surprised me a little.

Her rationale, however, made a lot of sense. Firstly, my PSA score will, based on most recent scores, enable Gary Tincknell to know just how well the chemo and hormone treatments have worked. The most recent PSA was 0.09, almost undetectable. If the PSA score remains like that then he will probably only want to retest in, say, 3 months, maybe longer. The PSA score is the most important indicator for Gary.

Steven Chin will not require any scans either. The fact I have not had any bone pains, since my treatment started, is the best indication the treatment is working. It will now be up to me to “shout” if anything changes.

This is all subject to the reviews with Gary and Steven, but Sarah said, “so far so good, go and enjoy your life”!

If all of this is confirmed on 13 February, the timing could not be better. Kim and I have a cruise booked, leaving Sydney on Cunard’s Queen Elizabeth, on 20 February, for Fiji, Vanuatu, and New Caledonia. I couldn’t think of a better way to celebrate the good news.

Fingers crossed, but I think I may be coming out the other end of this little set back in my life!

Our lovely neighbours at the Bawley Vale Winery, Marg & Chris, gave us a fig tree for Xmas. Kim and I decided to plant it to mark my final chemo session, on 3 January. Evidence below, with my “assistant” Maisie, in the background!

I hope to see it grow very substantially, along with my hair!